Meet Kirill, a young sweet boy who needs help getting into a rehabilitation course from the ‘Ray of Hope’ (Luchik Nadezhdi) medical centre in Yevpatoria – costing 232 400,00 rubles.
Kirill has a hyperkinetic form of cerebral palsy, with severe limited coordination and movement disorder and limited hand function. Sadly, he also has pseudobulbar palsy – a disorder which limits his flexibility to chew and swallow freely as well as anarthria which is moderate protein-energy malnutrition.
Other issues Kirill fights on a daily basis include scoliotic posture, deformation of the feet causing them to be flat, symptomatic epilepsy,) mitochondrial dysfunction which limits the amount of energy his body can produce and hyperhomocysteinemia, a disease that causes high levels of homocysteine in the blood to occur, of which could potentially cause life-threatening blood clots.
Kirill’s mother wrote to us for help, her letter can be seen below:
‘Good afternoon, I would like to tell you our story and ask for your help to fund a rehabilitation course for my son at the Ray of Hope (Luchik Nadezhdi) medical centre by March 2019.
Kirill was born at 38 weeks with serious asphyxiation because the umbilical cord was around his neck. As a result of oxygen deprivation, our son had lesions on his brain. We live in Chuvashia in the city of Novocheboksarsk, but for the last two years (except in the summer holidays) we have been trying to go to Yevpatoria, so that we can make the most of the rehabilitative courses for our son as the courses needed are not offered in our area.
At five years old, Kirill holds his head up with some difficulty and cannot sit, talk, play with toys and eat by himself. Furthermore, it’s hard for him to swallow and put on weight. He weighs thirteen kilograms, which is very little for his age. However, he can learn all of these skills through individual, long-term rehabilitation courses and appropriate treatment.
We have done many rehabilitation courses in various medical centres, where our son constantly endures jabs and other types of procedures. Of course, sometimes the discomfort is necessary as every treatment procedure so far has given positive results.
According to the epileptologists and neurologists, they say the period between seven to eight years old is when the child’s brain is most flexible and prone to learning, an age which Karill is soon approaching. Hence, we wish to attend these courses as the chances of rehabilitation are high, however all the courses are very expensive.
There is a lot of progress still to be made with our son, although the prognosis was that we should give up, that he would not survive long after his first birthday and if he did live as long as this, the he would be deaf and blind. Nevertheless, my husband and I did not believe this, and day after day we have slowly regained the health of our only son.
By completing the first treatment courses, Kirill has learnt new life-changing skills: now he is able to hold his head up by himself, roll himself from his back onto his stomach, balance himself on support handles, has become very responsive to speech and can fulfil small requests. As a result of his back also becoming stronger, Kirill wants to run, jump and mess around like all the healthy children, but so far his body is not listening to him which frustrates him immensely. Kirill is like any other young person – he too really likes to watch cartoons, walk and interact with other children in the community, listen to songs and do art with our help.
Therefore, we strongly appeal to you to help our son. Help us in our journey to raise him to his feet, help him fit in with society and most importantly to give him the experiences of a proper childhood which no one should miss out on. He has already defeated death many times, and now our only aim is toward new victories.
Kirill Fadeeva’s mother’