Diagnosis: cerebral palsy, spastic tetraplegia
Expectations: with the wheelchair the child would be able to sit properly, hold his head, the spasticity will decrease.
From his mother’s letter:
«Our long-awaited baby was born on 19 June 2015 in the maternity clinic № 1 in Kazan. Rinal was born on the 30-31 week with a weight of 1880 grams. He was immediately placed to the intensive care unit and was on a ventilator from day one. During the contractions, which lasted 18 hours, the baby had ischemia and hypoxia. The doctors thought they would stop the labor to keep the pregnancy, but they made everything worse. In July we were discharged from the hospital and immediately registered with a neurologist. When my son was 4 months old, we began to do massage, exercise therapy. At 4, 6, 10 months old he was admitted to the children’s city hospital No. 8, where he was diagnosed with spastic tetraparesis, cerebral palsy. After that we began treatment at the “First Step” Clinic of Chinese Medicine in Kazan. In December 2017, we went to the Czech Republic to the Novy sanatorium. Then we went 2 times in 2018 in March and July. The treatment there showed good results. We also completed 5 courses of rehabilitation in the “Adeli” Center in Penza, and 4 courses at the Center for Pathology and Speech and Neurorehabilitation in Yoshkar-Ola. After each course Rinal shows very good results. He is very smart, he understands everything, speaks single words. He has already learned to roll over, crawl, sit and walk with support. Doctors say that Rinal is a very promising child. But it is a very hard work. Rinal is our only child. We believe and hope that he will be able to walk and talk. Unfortunately, the treatments are very expensive. All this time we somehow managed to pay for it by ourselves. But now our family is asking for help from you. PLEASE HELP OUR BOY! We won’t be able to make it without your help. Rinal is still quite small but has already experienced so much pain … I really want our beloved son to be able to live like all healthy children, to play, walk, communicate… But this requires a lot of strength and rehabilitation. I really hope that you will help us.
A properly selected stroller for children with cerebral palsy is very important. They spend most of their time in it. It is important for the child to sit in the correct position, and it can help to recover a lot faster. If the child does not sit in the correct position, there may be with spine, dislocation of the joints. »
The Foundation has launched a fundraising campaign for Rinal.
In case the funds raised for a particular child exceed the required amount, the balance shall be used to cover treatments for other children and other expenses associated with the present program (Clause 1.6.3 of the “Regulations of the charity program of targeted help “Shag Navstrechu” (Take a Step).