Diagnosis: the mixed form of cerebral palsy, 1st type diabetes.
Expectation after the rehabilitation: the child will be able to walk with a stick, have better motor coordination, speech and fine motor skills, the spasticity will decrease.
From his mother’s letter:
«Roma is my first and only child, delivered at term. During the delivery, he had asphyxia and 1st-degree blood stroke. After 4 days on a ventilator, 7 days in ICU, recovery, and finally we were discharged 28 days later. At first, it wasn’t that bad, we consulted with a neurologist, and he prescribed massage and physiotherapy, and 3 months later Roma could keep his head, turned over, walked around. And then I noticed that he started rolling over less often and he wasn’t developing physically. We knew something was wrong and went to see doctors. That was the beginning of the life we have now. Continuous rehabilitation courses, exercise therapy and massage at home, hippotherapy, swimming. We tried everything available in our city. I could not believe that everything was so bad, it seemed that just a little more effort was needed, and my boy would get better, learn to crawl, speak and walk. But that didn’t happen. Of course, the treatment gave its results, after each course in the hospital we saw small improvements, new movements, small and not noticeable at first, but so important and joyful for us.
When Roma turned 2.8 years old, he went to attend a specialized kindergarten. At first it was a daytime group (three hours a day), from the age of 3 he was transferred to a full day (from 8.00 to 16.00). Roma really liked the kindergarten. He liked to communicate and play with other children, to study. By the age of five, he started speaking and reading. He really loved reading encyclopedias, books about nature, fairy tales. Outside read all the advertisements and signs.
Roma did not go without surgeries. When he was 4, he had achilles tendon surgery, at the age of 5 he had surgery according to Dr. Ulzibat’s method. We had to go to St. Petersburg, Nizhny Novgorod, Samara. New methods of treatment gave a great result, and Roma finally was able to stand on his own. At first, for 5 seconds, then 10, 15. I was happy it made me cry. Perhaps it seemed that these were very small achievements, but to us they were huge. Over time Roma began to take walks with pleasure and could walk for a long time with support. At home, Roma also works hard as now clearly understands that the result depends on how hard he works.
The son is in 5th grade at the specialized school. His grandmother takes him there. He can read and write by himself.
In April 2016, Roma was diagnosed with type 1 diabetes. He was admitted to the intensive care unit unconscious and thought to have meningitis. It wasn’t meningitis, it was type 1 insulin-dependent diabetes. We were in shock at first, I couldn’t stop asking myself – why is this happening to my child?! We later have adapted and accepted this lifestyle with proper nutrition, positive emotions and sugar control. Because of the diabetes, he felt his dependency even more acutely (exercises reduce the sugar level).
In 2020, Roma underwent a rehabilitation course at the “Rodnik” center in Moscow. The Moscow branch was initially chosen because it was closer, and it was worth it. Their adapted physical education specialists, speech therapist, massage therapist taught my boy new skills and helped him take another small step towards his dream.
But Roma needs repeated courses. He is 11 years old, and the older is the child, the more difficult the rehabilitation is. I am very worried that there is not enough time and I will not be able to help him. I raise my son alone and I don’t have enough money. Sometimes I feel so desperate I want to scream.
Therefore, I am asking you with all my heart to help me and my son to pay for the rehabilitation course at the “Rodnik” center in Moscow.
We believe that after the course Roma will be able to be a little more independent in walking with a stick. This means freedom to move around and communicate with others.
We believe that there are many caring people in this world who will not leave us alone with our problem. We are so grateful for having such people in our life. »
The Foundation has launched a fundraising campaign for Roman.
In case the funds raised for a particular child exceed the required amount, the balance shall be used to cover treatments for other children and other expenses associated with the present program (Clause 1.6.3 of the “Regulations of the charity program of targeted help “Shag Navstrechu” (Take a Step).