The Goal of the Program
– Improve the quality of life of orphans and children with severe and multiple developmental disorders (habilitation, rehabilitation, treatment and social integration)
The Target Group
Children with severe and multiple physical and psychological development disorders from 0 to 25 years of age:
- in families
- in medical institutions (hospital pediatric departments)
- in orphanages, shelters and boarding schools
- in shelters
- in centers for family care and temporary care facilities
- in children’s hospitals, etc.
What are severe and multiple developmental disorders?
– A condition in which a child has been diagnosed with a wide range of serious diseases and disorders. Both intellectual and physical. They can include autism, an extremely severe delay in intellectual and emotional development, behavioral disorders, cerebral palsy, curvature of the limbs, and Down syndrome… But this is not important.
Our primary concern is the child. This is a small person who desperately needs the help of adults and specialists, because they are unable at first to stand, eat themselves, or even hold their head up.
But it is likely that THEY WILL BE ABLE TO if they receive help in time – help commensurate with their comprehensive diagnosis. Nevertheless, very often both parents and specialists are prepared to forgo helping the child!
Types of charitable assistance
We help in cases where assistance from the government is difficult or impossible to obtain.
Treatment and rehabilitation courses and devices for children with serious and multiple developmental disorders
- We purchase wheelchairs, braces, and other assistive devices
- We raise funds for treatment, rehabilitation, and social integration
- We carry out verticalization for children with disorders of the musculoskeletal system
- We organize and pay for other follow-up care
- We arrange for rehabilitation using therapy dogs
Verticalization of orphans with developmental physical anomalies
- We create conditions whereby “hopeless” and “nonambulatory” children learn to sit, stand, walk, run, grasp handrails, and hold up their heads.
- To accomplish this, we create conditions for active growth; gaining weight; and strengthening and building up the muscles of the neck, legs, and back.
- We organize diagnostic and consultative visits to orthopedic physicians for orphans and children at boarding schools
- We organize the fabrication of braces, removable joint immobilizers, and other assistive devices
- We organize training for specialists at boarding schools (massage and physical therapists) and assist them when they work with children in braces and removable joint immobilizers
Intellectual development and life skills
- We hold individual and group corrective/developmental classes using the Portage model for children with developmental intellectual problems in orphanages and in family settings
- Corrective/developmental classes as part of in-home visits with children that are especially difficult to transport
- We organize activities by volunteers and student social work practitioners with children of Miloserdiye groups
- We organize social, financial, psychological, speech pathology, and other assistance for specialists
- We provide for the establishment of playgrounds and sensory rooms for children
- We draw the public’s attention to the problems of children
Improving the quality of life
- Converting living spaces (home improvement, equipment, furniture, household appliances, textiles, playgrounds, sensory rooms, and other things in facilities for children)
- Supplementary nutrition (purchase, delivery, and feeding)
- Specialized equipment (mattresses for preventing pressure sores, wheelchairs, etc.)
- We purchase hygiene products, clothing, and footwear
- Communications equipment (including personal communication devices, computers, tablets, etc.)
- Teaching aids, manuals, books, creative and developmental supplies
- Special individual devices.
- We organize special holidays that children with severe disabilities can appreciate
- Cultural and cognitive activities
- Workshops for orphans and families with a special needs child
- We facilitate the work of volunteers in our families and childcare facilities
- Workshops on cooking, stylistics, flower arranging, soap making, etc.
- Self-help training events
- Independent living training events
- We draw volunteers and the public to support families that have children with disabilities
Emergency financial aid
We often receive an urgent request to provide such assistance as purchasing an anticonvulsant drug for an orphan, paying for tests, or getting children into a hospital or a school. Families with a disabled child frequently experience serious financial difficulties and find themselves on the verge of giving up the child. Single mothers are forced to be with their child around-the-clock and unable to work, with a low standard of living. They need the simplest things.
Help is available:
– on request from the institutions under care of our fund
Assistance to childcare facilities for children with Disabilities
- We purchase assistive devices, medication, special furniture, books and training materials; we organize needed medical care in difficult cases
- We help with the acquisition of training materials; products; and materials for classes, development, and creativity
Education and sharing experiences
- We provide information to families raising children with severe and multiple developmental disabilities concerning payment for treatment and rehabilitation and finding suitable clinics and specialists
- We support sharing of best practices in the field of rehabilitation and psychological care for special needs children
- We publish best practices, manuals, and results of scientific and practical work in the field of rehabilitation of children with severe and multiple developmental disorders
- We organize and conduct seminars, training events, conferences, festivals, and other events aimed at sharing experiences, and attracting the attention of specialists in the public to the problems of the target group.
How the program works
The program follows the plan submission approach.
A beneficiary (or his representative) files an Application describing the problem and the request.
Our fund checks the Application for compliance with requirements and either accepts or rejects the Application.
Requirements an Application must meet
An Application consists of a statement describing the applicant’s request and bearing his signature and organizational seal (for legal entities). An Application is accompanied by supporting documents – copies of statements, medical opinions and recommendations, copies of the account and contract, and photographs (if necessary); additional documentation may be added for a specific project.
If an Application is accepted for implementation, it is registered as a micro-project. Our fund announces a fundraising program or implements the request using previously reserved funds or funds that have been earmarked for the project.
Projects of the program
- Orphan Assistance Projects
- Canine Therapy (Dog-Assisted Therapy) Project
- Verticalization Project
- Help Orphanages Project
- Portage Model Project
- Diema’s Dream Village Project
- Family Assistance Projects
- Home Visits Project
- Parents Club Project
- “I See the World” Project
- “Take a Step” Project
- “Help Our Children!” Project